Grieving March family raise £12,000 for epilepsy charity SUDEP in memory of fearless Nikey

21:48 09 March 2014

Nikey Robinson.

Nikey Robinson.

Archant

The family of a 23-year-old epilepsy sufferer who died suddenly almost a year ago has raised £12,000 to fund research into the condition.

Nikey Robinson, of March, died of Sudden Unexpected Death in Epilepsy (SUDEP) in her sleep on March 21, 2013.

Since then, her parents Caron and Peter Robinson and her sisters Jaime and Ceri, with the help of friends, have embarked on the Nik’s Shout for Epilepsy campaign.

Nikey’s mother, Caron Robinson, said: “At its worst, she would suffer 200 seizures a month, but Nikey lived her life to the full and without fear.

“She met every challenge and rose to it. She had no limits and wanted to try everything.

“She went on holiday abroad, did bungee jumps and went on the biggest rollercoasters. Nikey wanted what everyone else took for granted.

“She was a beautiful, selfless, generous soul and an advocate for others less able.

“With this in mind we could think of nothing less apt then to raise awareness and funds for epilepsy charities in her memory and honour, in the hope to provide help and advice for others whose lives are affected by epilepsy.”

There are at least three epilepsy-related deaths a day in the UK, the majority from SUDEP.

Nik’s Shout For Epilepsy supports three charities - SUDEP Action, Young Epilepsy and Epilepsy Action.

They have held bingo nights, race nights, discos, spiritualist evenings, jewellery sales and zumbathons to raise awareness of epilepsy.

Jade Fell and Lola Dack took part in a tandem skydive and family friend Paul Harlock has taken on a gruelling year-long weight loss challenge.

Nikey attended both school and college at St Elizabeth’s Centre in Bishop’s Stortford, which provides education, care and medical support to people of all ages who have epilepsy and other complex needs.

One of the chief aims of the campaign is to raise funds so that the centre can hold a Leavers Ball every year.

Nik’s Shout For Epilepsy is holding a bingo night on March 28 at Benwick Village Hall and a balloon release is planned to coincide with National Epilepsy Awareness Week, which runs from May 19-25.

To give your support to Nikey’s campaign call 07762 969693 or visit the Nik’s Shout For Epilepsy Facebook page.

0 comments

More news stories

Cordia Wind Quintet

The Cordia Wind Quintet entertained an enthusiastic audience in the Hayward Theatre on Thursday June 23.

Yesterday, 15:32
Building can begin in September 2016 - as long as it receives £1.5m in funding from Sport England.

Building of the new £13.5m District Leisure Centre in Ely is to begin in September after East Cambridgeshire District Council gave it the green light this week.

08:30
The Secret Life Of Pets.

Based around the eight or so hours that animals are left to their own, often chaotic devices, this eye-popping New York City-based animation comes from Illumination Entertainment, the creative group who brought Minions to life.

06:33
East Cambridgshire Business Awards 2015
Medium Business of the Year winners Ellgia Recycling

Last year’s main Ely Standard Business Awards winner Steve Crook and his company Ellgia Recycling are following their success in 2015 by sponsoring the Medium Business of the Year award.

Most read stories

Digital Edition

Image
Read the Ely Standard e-edition E-edition
HOT JOBS

Show Job Lists

Newsletter Sign Up